Daily Life

Same hospital, new view. This week Jeremy has been overall not feeling well and really weak. Long story short, we ended back up at the hospital yesterday morning because he has some sort of infection going on. They think it's a complication due to the procedure he had done last week but still waiting for more information. So for now he is hooked up to fluids and getting a broad spectrum of antibiotics. It looks like he'll be here over the weekend as they try to get his infection under control. I personally think he just likes being here just so he can see his IR team more. 😉 We joke that they are his IR wives because they take such good care of him and always come find him to check on him even when he's not in their care. They keep us smiling.

Eek!!! Guess who's going home!?! A couple days ago I was scared this wasn't going to happen. But it is! We are both excited to be going back to the comfort of our own home and our kids.

Jeremy's numbers headed in the right direction overnight. Not there yet though.  I can see a difference in him and I am grateful for that. He will definitely be here all weekend to see how he does.  I told my sisters this morning, that I'm living the most intense roller coaster of my life... While holding a very large cup of coffee. 

The surgery itself went well. His nurse who he had had only one other time and it was back when he had his port put in, came out to see me before the Dr did to tell me all went well. He got choked up and told me how sorry he was that we are going through this. And then he hugged me. I have a couple thoughts run through my mind when this happens... Cuz it happens a good deal these days. 1- Jeremy has some pretty  incredible caring people taking care of him. It overwhelms me and blesses me.  2- He must be in pretty bad shape for it to affect so many people like this. I mean I know it's bad because we are living it but I guess it's REALLY obvious.  And 3-  Good thing I'm a hugger. We will have to wait and see over…

Unfortunately, we are still at the hospital. Jeremy's kidney function continues to misbehave, so tomorrow he goes under anesthesia for another procedure that will help his kidneys drain and hopefully return his kidney function to normal. It's not one that we wanted for him but he's still fighting. He still wants to fight. My quiet, laid back husband is turning into the bravest and strongest fighter I have ever met.  Today one of our dearest friends jumped in her car pretty much as soon as she got my text that I was a mess today. I love that she was already 20 minutes into her journey to us before she realized she had no idea where we actually were. This made me laugh pretty hard when she told me but also want to squeeze her for the beautiful soul that she is. Elizabeth was my roommate when Jeremy moved to Atlanta…

This morning I ran downstairs to get coffee and it felt like dejavu. Didn't it look like this yesterday? We were hopeful Jeremy was going home today but his counts say otherwise. So today's goals are trying to get him hydrated. His body isn't distributing fluids correctly so this most likely causing the issues with his kidneys at this point. 🤞🏼 Better scenario than some of the other things we were looking at. So more calcium, albumin and fluids today. Positive in all this? Lola's working tonight.

Still here. We slept well last night, due to Lola, the bossy nurse, working with me to come up with a schedule to disturb him the least amount of times as possible. I call her bossy because she basically told me I was going to sleep and she was going to help him in the middle of the night if he needed it. 😆 I like her kind of bossy. 💜 We were close to be going home today. Calcium levels are within safe range and kidney function numbers look good. A few things have popped up and it looks like we may be here another night. Sooooo.... Here we stay.

Looks like Jeremy's kidney function is back in the normal range! Grateful they were able to find the problem and correct it before there was kidney damage. The doctor said it was a good sign that his numbers improved so quickly after putting in the stents. They will continue to monitor this as we move forward and hopefully nothing else will need to be done.  His calcium continues to stay too low for it to be safe to go home so he will be here probably for the next 2-3 days as they work to bring that up. The type of chemo he is on is most likely the culprit for this issue as it is a known side effect. We learned the results of the CT scan. The mass in his chest wall has decreased in size and the other known masses appear stable.  Unfortunately,  they found another mass in…

It's been a couple weeks since I've posted an update on Jeremy, so while I'm sitting in a bay at the hospital waiting for him to come back from having a para and thora done, I thought I would hop on here.  Last week he finished his last chemo for this round and so now it's time for a CT scan to see if it's working. We will head over to have the scan done around noon today.  The oncologist is hopeful that it is being effective. We go back to see her on Thursday so I'm assuming we will go over the results then.  Unfortunately there are no clinical trials in GA that Jeremy would qualify for at this point.  Every day is a roller coaster, some bad days with some better days. Jeremy has been able to eat, though nowhere near pre-cancer standards and has slowed down the…